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Sunday, January 15, 2012

The pot of gold at the end of the rainbow??

I have found a new Rheumatologist and he is good! Me and hubby went to the first appointment and it took about 2.5 hrs total including labs and such. He took a very detailed medical history and went all over my notes on all the paperwork I was mailed to bring to the appointment. He listened to me and my concerns and hubby's; I left his office with an appointment to see him 2 weeks later and a little disappointed because he wanted to wait on labs before he agreed with diagnosis from previous rheumatologists or gave me indication of meds needed to control this horrible illness.
I was not disappointed for long, Dr. T called me a few days later and told me my inflammation markers were high which he thought I obviously knew and he wanted me to start with Enbrel.  WOW! I could not believe my ears! finally a Dr. that wanted to really treat my disease aggressively , we said goodbye and he even told me to call him with any questions. The silly thing is that I am afraid of bugging him LOL.
His staff contacted me a few days later after our conversation to start the insurance approval for the meds.
I am excited my next appointment is this coming Tuesday and I have to wait while dealing with a horrible flare of RA and Fibro.
My quality of life has diminished so much in the past few months; I spend most days sleeping or in bed resting, I barely make it to church, haven't attended my quilting group or quilting classes. I MISS MY LIFE previous to RA. I have a friend battling cancer and I can't even help her.
I pray that Enbrel will be "the pot of gold at the end of the rainbow". Based on the studies it helps 2 out of 3 patients, most people do not understand that RA treatment is a guessing game and most patients don't reach remission.
RA has taken so much but not my will to fight and learn to lead a fulfilling life even if my definition needs to be revisited, it has also added many friends and the realization that my family stands by me not matter what and they have proved it.
I still love myself and have kept my faith and I am learning all over again to hold on to God's hand....

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